For Parents

When a child is diagnosed with Duchenne, every parent asks themselves some critical questions:

*What does this mean for my child?
*What are all of the available treatment options for my child?
*How well does each therapy work?

We hope the information provided in these pages will help you and your health care provider to make informed decisions about the health care and therapy options available to you and your family. You are not alone.

ABOUT RaceMD

RaceMD® was founded in 2008 by the parents of a boy with Duchenne muscular dystrophy with the goal of providing support and hope to other families through information, research and action. We believe the medical discoveries have advanced to the point where DMD patients may have real, intermediate therapy available that can help extend life until cures are found.

RaceMD has also since founded the Duchenne Stem Cell Forum in an effort to keep the public up to date on the newest information, research, and therapy options available for Duchenne.
RaceMD has also since founded the Duchenne Stem Cell Forum in an effort to keep the public up to date on the newest information, research, and therapy options available for Duchenne. Learn more here.

 

Let’s Do This!

All donations go directly to RaceMD® and support and expand our current efforts, research and therapy trials.
All of this to help deliver therapy to those who need it most.

Donate Today!